🌱 Diagnosis & Early Intervention
Getting an evaluation and accessing early services.
Free CDC milestone checklists and a Milestone Tracker app help you follow your child's development from 2 months to 5 years, so you know what to watch for and when to act. A gentle first step when you're unsure whether to seek an evaluation.
ChildServe's pediatric specialists evaluate, diagnose, and treat children and young adults with autism spectrum disorder across central and eastern Iowa. Alongside diagnosis they offer ABA, therapies, and a specialized Autism Day Program for young children.
The state's official overview of Early ACCESS explains eligibility and how anyone, including parents, can refer a child under 3 for a free developmental evaluation. It's a trustworthy starting point for understanding Iowa's birth-to-three early intervention system.
Early ACCESS is Iowa's free early intervention system for children from birth to age 3 who have a developmental delay or a health condition that may affect their growth. You can request a free evaluation yourself, with no doctor referral or diagnosis needed, and services come at little or no cost regardless of income.
Iowa's tertiary autism diagnostic center at UI Stead Family Children's Hospital, where a team of specialists across disciplines evaluates and diagnoses autism and supports families through what comes next. They also offer treatment programs, social skills groups, and coordinated care all in one place.
This Iowa City university clinic offers interdisciplinary autism diagnostic evaluations plus early-intervention programs like Project ImPACT parent coaching. It's a warm local option for both answers and hands-on support with communication and social skills.
⚖️ School & IEP Rights
IEPs, 504 plans, special education, and school advocacy.
Every state has a federally funded Parent Training & Information Center offering free help with IEPs, special-education rights, and early intervention. This hub's directory locates the center that serves your state.
A national nonprofit protecting the rights of students with disabilities. Use their member directory to find a special-education attorney or trained advocate near you when you need help with an IEP or a dispute with a school.
Every state has a federally mandated Protection & Advocacy agency that offers free legal help when a school isn't following your child's IEP or evaluating them as required. This directory connects you to the office serving your area.
ASK is Iowa's official Parent Training and Information Center, offering free one-on-one support, workshops, and guidance to help you understand your child's special education and IEP rights. A family support specialist can walk alongside you through evaluations, IEP meetings, and disagreements with the school.
Disability Rights Iowa is the state's federally designated protection and advocacy agency, offering free legal help and advocacy for students with disabilities. They can assist with special education complaints, unfair suspensions or expulsions, restraint and seclusion concerns, and defending your child's rights at school.
The state education agency's parent page gathers official guides on planning for IEP meetings, what to expect, and your procedural safeguards, with the parent-rights manuals available in 15 languages. It is a trustworthy starting point for understanding your rights in Iowa's special education process.
This state-supported hub explains parents' special education rights in plain language, covering procedural safeguards, consent, prior written notice, IEP participation, and how to resolve disputes with your school or AEA. It offers clear guides and videos to help you feel prepared for every step.
Grant Wood AEA is the public agency that partners with Linn County school districts to evaluate children, write IEPs, and provide special education services like speech, OT, and school psychology. If your child needs an evaluation or you have IEP questions, their team is your local starting point.
If you're facing a school dispute you can't resolve on your own, Iowa Legal Aid offers free civil legal help to lower-income families, including advice and representation around IEPs and special education rights. Their Central Iowa office serves Polk County, and you can apply by phone or online.
🧩 Therapy & Treatment
ABA, speech, OT, and finding the right providers.
You matter too. Psychology Today's therapist finder filters for 'caregiver stress' and 'autism family,' and Open Path Collective offers reduced-cost therapy sessions nationwide. You cannot support your child well without also supporting yourself.
A free statewide program with family navigators and nurses who help you find a diagnosis, understand your child's autism, and connect to community services. RAP serves families in all 99 Iowa counties at no cost.
The UI communication clinic provides speech and language therapy, parent coaching, and social-skills programs for children and teens on the autism spectrum. It also offers team-based autism diagnostic evaluations.
Caravel's Iowa City clinic focuses on evaluating, diagnosing, and treating young children with autism through clinic-based ABA therapy, serving kids as young as 12 months. Their team walks families through the process from first assessment onward.
ChildServe is a well-established Iowa nonprofit whose Coralville location offers an Autism Day Program, ABA, speech-language therapy, and occupational therapy for kids, all in a space built with sensory-friendly gyms. It's a trusted local option right here in Johnson County.
💰 Financial Assistance & Benefits
Medicaid waivers, SSI, ABLE accounts, and legal aid.
ABLE accounts let people with disabilities (onset before age 26) save money tax-free without losing Medicaid or SSI eligibility. This center compares every state's ABLE program so you can pick the best one for your family.
IAble lets your family save money for disability-related expenses without losing SSI, Medicaid, or other means-tested benefits. Iowa taxpayers also get a state tax deduction on contributions.
Iowa Compass is a free, statewide referral service that connects families to disability programs, waivers, respite, and funding across Iowa. You can call, email, or chat and a real person will help you find the right door.
Iowa's Medicaid home- and community-based services waivers help your child get support at home instead of in an institution, including respite, day habilitation, and in-home care. The Intellectual Disability and Children's Mental Health waivers are common paths for autistic kids and their families.
This state program adds a monthly cash payment on top of SSI for eligible Iowans who are aged, blind, or have a disability and have special living needs. It can help cover a personal-needs allowance or the cost of certain care arrangements.
Local county case managers help families enrolled in the Intellectual Disability or Brain Injury waiver coordinate services and can connect you to the HIPP program, which helps pay health insurance premiums. Based right in Iowa City.
🤗 Support Groups & Community
Find your people — in person and online.
The nation's oldest grassroots autism organization. Their National Helpline connects families to information and referrals, and their affiliate finder points you to a local chapter in your area for in-person support and events.
The largest national community-based organization for people with intellectual and developmental disabilities. Local chapters offer advocacy, family support, and lifelong services. Use the chapter finder to locate the office nearest you.
Dial 2-1-1 (or visit 211.org) to reach a free, confidential referral line for local health and human services in almost every US community — including disability services, respite, food, housing, and financial assistance.
This statewide nonprofit runs free virtual support groups for parents and caregivers, teens and young adults, grandparents, and self-advocates, plus regional in-person groups across Iowa. It is a warm place to connect with other families who understand what you are going through.
A year-round recreation and respite facility in Monticello serving people of all ages with disabilities, offering day and overnight camps, travel programs, and both planned and emergency respite weekends. It gives kids joyful experiences and gives caregivers a much-needed break.
A federally funded state council that helps Iowa families learn to advocate for their loved ones, track disability legislation, and connect with their elected officials. It is a good starting point when you want your voice heard on the issues affecting your child.
This state program helps pay for Applied Behavior Analysis (ABA) therapy for Iowa children under 14 who have an autism diagnosis but do not qualify for Medicaid or private insurance coverage. Staff can walk you through the application if cost has been a barrier to therapy.
This Center for Independent Living has a Cedar Rapids office and maintains a directory of local Linn County support groups for people with disabilities and their families. Staff can point you toward the right group and connect you with community resources when you are not sure where to start.
A longtime Iowa City nonprofit serving Johnson County families of people with disabilities, offering respite care, recreation and day programs, and family support. A warm local place to connect and find hands-on help.
🚀 Adult Transition & Long-Term Planning
Aging out of school, adult services, and long-term planning.
Iowa's parent training and information center offers free guidance on planning for life after high school, including living, learning, and working as an adult. Their Transition Iowa resources and family coordinators can help you build a roadmap for aging out.
IAble, run by the Iowa State Treasurer, lets people with disabilities save and invest money tax-free for disability expenses without losing SSI, Medicaid, or other benefits. It's one of the simplest long-term financial planning tools for your family to set up.
A state office that serves as guardian or conservator of last resort and provides guidance on guardianship, conservatorship, and less-restrictive alternatives like supported decision-making. A helpful first call when you're weighing how much decision-making support your adult child will need.
Iowa's state agency that helps people with disabilities prepare for, find, and keep meaningful work, with career planning, job training, benefits counseling, and support for students transitioning out of high school. If your teen or young adult is ready to think about employment, this is the place to start.
This state office helps your young adult find and keep a job, with career planning, training, and support built around their strengths. It serves Johnson County and works with students still in high school as well as adults.
A note on these listings. This directory is informational and not an
endorsement. Programs, phone numbers, and eligibility change — always confirm details
directly with the provider before relying on them. Nothing here is medical or legal advice.
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