🌱 Diagnosis & Early Intervention
Getting an evaluation and accessing early services.
Free CDC milestone checklists and a Milestone Tracker app help you follow your child's development from 2 months to 5 years, so you know what to watch for and when to act. A gentle first step when you're unsure whether to seek an evaluation.
This developmental pediatrics program in Chicago offers autism diagnosis and developmental evaluations for children from birth to age 18, plus speech, occupational, and behavioral therapies. It's a full team ready to assess your child and guide you forward.
Illinois' free statewide program evaluates babies and toddlers from birth to age 3 for developmental delays and, if your child qualifies, sets up therapies and support at no cost through a family service plan. One call connects you to your local Child and Family Connections office.
Rush University Medical Center in Chicago offers comprehensive autism diagnostic evaluations and treatment for children, teens, and adults. It's a trusted hospital-based option when you need a thorough assessment and a plan for next steps.
Comer Children's Hospital provides autism diagnosis for infants and toddlers under age 3 as well as ongoing care for older children, using gold-standard tools like the ADOS. A caring team helps you understand your child and plan therapies.
Part of the University of Illinois, this state-partnered division helps families across Illinois navigate Early Intervention and connect children with special healthcare needs to evaluations and services. Their helpline can point you to the right local office.
This McHenry practice uses standardized tools like the ADOS-2 to formally assess and diagnose autism spectrum disorder in children. It's a local option for families seeking a diagnostic evaluation close to home.
Living Rite provides psychological and neuropsychological testing, including autism evaluations, for children and young adults right here in McHenry County. They see families by appointment at their McHenry and Algonquin offices.
This local nonprofit is McHenry County's official entry point for free Illinois Early Intervention evaluations and services for children birth to age three. Their Autism Resource Center also offers screenings, family support, and educational advocacy for children on the spectrum.
⚖️ School & IEP Rights
IEPs, 504 plans, special education, and school advocacy.
Every state has a federally funded Parent Training & Information Center offering free help with IEPs, special-education rights, and early intervention. This hub's directory locates the center that serves your state.
A national nonprofit protecting the rights of students with disabilities. Use their member directory to find a special-education attorney or trained advocate near you when you need help with an IEP or a dispute with a school.
Every state has a federally mandated Protection & Advocacy agency that offers free legal help when a school isn't following your child's IEP or evaluating them as required. This directory connects you to the office serving your area.
Equip for Equality is Illinois's federally mandated disability rights legal organization, and their free Special Education Rights Parent Helpline lets you talk through IEP, 504, discipline, and evaluation concerns. They can also provide limited legal help at IEP meetings, mediations, and hearings.
Family Matters is Illinois's only federally funded Parent Training and Information Center, and as of October 2025 it serves families across the entire state. Their team offers free one-on-one coaching, IEP guidance, and workshops to help you understand your child's special education rights.
The state education agency's special education portal hosts A Parent's Guide to your child's educational rights and responsibilities, plus tools for IEPs, evaluations, and resolving disagreements with a school. It's the official Illinois source for how special education is supposed to work.
Equip for Equality is Illinois' governor-appointed disability rights protection and advocacy agency, serving families statewide including Lake County. Their Special Education Helpline offers free guidance, and in some cases legal representation, for IEP meetings, evaluations, discipline, and dispute resolution.
Family Matters is a federally funded center that helps Illinois parents of children with disabilities understand their rights, prepare for IEP meetings, and work effectively with their schools. Their trained parent staff offer free, one-on-one support by phone.
The state education agency's parent hub explains your child's special education rights in plain language, including the full "Parent's Guide" in English and Spanish. It also lays out how to request mediation, file a complaint, or ask for an IEP facilitator if you hit a disagreement with your district.
SEDOM is the county's own special education cooperative, working with eleven local school districts to provide programs and services for students ages 3 to 21 whose needs go beyond what their home district can offer. It is the local hub behind your child's special education services, and your district can connect you.
🧩 Therapy & Treatment
ABA, speech, OT, and finding the right providers.
You matter too. Psychology Today's therapist finder filters for 'caregiver stress' and 'autism family,' and Open Path Collective offers reduced-cost therapy sessions nationwide. You cannot support your child well without also supporting yourself.
The largest statewide autism network in the country, TAP connects families to screening, diagnostic evaluations, therapy (ABA, speech, OT/PT), and support groups through more than 20 centers across Illinois. A great first call when you're not sure where to start.
A university clinic at the University of Illinois Chicago providing autism diagnosis, psychological and speech-language evaluations, counseling, and behavior services for individuals ages 3 and up. Care is offered in English and Spanish by a bilingual, multidisciplinary team.
A University of Illinois Chicago program offering free care coordination for families of children with special healthcare needs in every Illinois county. Care coordinators help you find specialists, therapy, and services and navigate the paperwork that comes with them.
A McHenry-based nonprofit therapeutic day school founded by two autism moms, offering intensive ABA, occupational, physical, and music therapy for children ages 3–22. They specialize in one-to-one support for kids who need a more individualized setting.
The county's mental health board keeps a vetted list of local autism therapy providers, clinics, and support programs so you can find help close to home. It's a good first stop when you're not sure who serves your area.
A Crystal Lake pediatric therapy practice offering occupational, speech, physical, and feeding therapy in a warm, play-based setting, plus evaluations for autism and ADHD. Everything for your child's therapy team is under one roof.
💰 Financial Assistance & Benefits
Medicaid waivers, SSI, ABLE accounts, and legal aid.
ABLE accounts let people with disabilities (onset before age 26) save money tax-free without losing Medicaid or SSI eligibility. This center compares every state's ABLE program so you can pick the best one for your family.
Equip for Equality is Illinois' federally designated disability rights protection and advocacy agency, offering free legal advice, self-advocacy help, and representation. Reach out if your child faces discrimination or you need help enforcing their rights.
Run by the Illinois State Treasurer, IL ABLE lets your family save and invest for disability-related expenses without risking SSI or Medicaid eligibility. Earnings and withdrawals for qualified costs like housing, therapy, and daily living are tax-free.
Illinois' Medicaid agency offers this waiver to help families cover things like assistive technology, home and vehicle modifications, and behavior treatment so your child can stay at home. It serves kids and young adults ages 3-21 with intellectual or developmental disabilities.
Run by the Illinois State Treasurer, IL ABLE lets your family save and invest for disability-related expenses without risking SSI or Medicaid eligibility. Earnings and withdrawals are tax-free when used for things like housing, therapy, and daily living costs.
This county board funds local programs that support people with intellectual and developmental disabilities, including day services, residential support, and respite for caregivers. If you're not sure where to turn, they can point you toward the right funded provider in the county.
This Crystal Lake office is the official doorway to Illinois' developmental disability services for McHenry County families. Their coordinators handle your PUNS registration, the state waitlist that connects your child to Medicaid HCBS waiver funding, and they walk you through it at no cost.
🤗 Support Groups & Community
Find your people — in person and online.
The nation's oldest grassroots autism organization. Their National Helpline connects families to information and referrals, and their affiliate finder points you to a local chapter in your area for in-person support and events.
The largest national community-based organization for people with intellectual and developmental disabilities. Local chapters offer advocacy, family support, and lifelong services. Use the chapter finder to locate the office nearest you.
Dial 2-1-1 (or visit 211.org) to reach a free, confidential referral line for local health and human services in almost every US community — including disability services, respite, food, housing, and financial assistance.
A grassroots nonprofit serving families in Southern Illinois with support groups, education, advocacy, and recreation opportunities for children and adults with autism. Reach out to find local meetups and family programs near you.
A Chicago-area nonprofit that hosts monthly parent support meetings, a social and recreational club, and seasonal family events for children and adults with autism. It is a welcoming place to meet other families who understand.
A statewide nonprofit that helps Illinois family caregivers find a break, with respite referrals, training, and an emergency respite fund that offers stipends up to $500 for planned or unexpected situations. Call their toll-free line to talk through your options.
The county board that funds and connects residents to behavioral health and intellectual/developmental disability services, with a searchable directory of local providers. It also offers a free 24/7 crisis line for families who need someone right away.
Since 1976, NISRA has offered year-round recreation, camps, trips, and Special Olympics for people of all ages with disabilities across McHenry County communities. It is a warm, well-established way to find friendship and fun.
A McHenry County nonprofit whose Autism Resource Center helps families with autism find local providers, understand the special-education process, and connect through group activities. Nearly all services are free for county residents.
A long-standing McHenry County nonprofit supporting adults with intellectual and developmental disabilities through day programs, home-based support, and community and employment services. They help individuals build independence and lasting friendships.
A Crystal Lake nonprofit offering sensory-friendly family events, in-home and clubhouse respite, adaptive activities, and a caregiver guidance course for children and adults with autism. Most programs and monthly family events are free.
🚀 Adult Transition & Long-Term Planning
Aging out of school, adult services, and long-term planning.
A state agency that safeguards the rights of adults with disabilities, home to the Office of State Guardian, the nation's largest public guardianship program. They can guide your family through guardianship questions and connect you to legal help.
A free statewide program that helps families understand the sometimes confusing world of transition, adult services, waivers, and PUNS, with real people to talk through your next step. A trusted first call when your child is aging out of school services.
An Illinois nonprofit that has helped families set up and manage special needs (pooled) trusts for over 30 years, so savings won't jeopardize a loved one's benefits. They draft trust agreements and administer accounts that meet Social Security and Medicaid rules.
Run by the nonprofit Illinois Disability Association, this pooled special-needs trust lets families set aside money for a loved one without risking their Medicaid or SSI eligibility, at a lower cost than a private trust. It's a practical long-term-planning tool when a full individual trust isn't in the budget.
A note on these listings. This directory is informational and not an
endorsement. Programs, phone numbers, and eligibility change — always confirm details
directly with the provider before relying on them. Nothing here is medical or legal advice.
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